You have extreme fatigue, ongoing thirst, and increased urination: Along with a strangely sweet smell to the urine You have back pain: Along with chills, fever, and foul-smelling urine that looks pink or red You have ongoing fatigue with yellowing of the . My poor intolerance to heat, odors and smoke. It's crazy. During the summer I wear sweaters and always have to have a jacket wherever I go. I notice that if I eat starchy food, bread, potatoes, or fatty food, cheese, dairy, milk, meat. Maintaining proper nutrition will help boost energy levels and help avoid other health problems. Hey, please send some cold weather! unusual tiredness or weakness. The National Academy of Sciences estimates that up to 15 percent of the U.S. population is affected. Fibromyalgia can also cause: forgetfulness or poor concentration. It causes me to drop things a lot. Danika S. The constant sniffles/cough/dry mouth my meds cause. Have you tried to flush out the nostrils using a neti pot? I too have fibro, and am very interested in this conversation uyo two are having (old though it may be). Hi, Im sad to say that Ive developed this awful experience myself. Been doing that for 10 years. Flare-ups can happen without warning but often have noticeable triggers. Everything is just getting so much better. But, I just want you to know that you are not alone with this strange condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. It's no good, the Pharmacy brand spray, off the shelf works better. After mold remediation your need fungus and viral meds. To the uninitiated, it seems impossible that an odor could cause physical symptoms, such as headache, nausea, fatigue, confusion, and dizziness especially when the odor isnt even a particularly unpleasant one. Unfortunately it has many different smells. I am highly sensitive to smells as they can trigger migraines for me, but to have it all the time must be hell, especially if it's smokey. I tend to forget about it until it comes again but would love to know what causes it and how to stop it. The smell goes away for months at a time, only to return at a later date.. Hi there about 9 months ago i was in counseling when my sense of smell went crazy i dont know if the counseling uncovered some underlying problems from my past. I always feel awkward telling my doctors about my GI-related symptoms, whether it be nausea, constipation or diarrhea. Mattie M. I have diarrhea. I have gone through all the comments but sadly none of you guys seem to have this figured out. I'm glad/sorry to know I'm not alone and that I am indeed not crazy. (I can't tell you how many times I searched the house, looking for that odor that no one else could smell.) This probably won't help but I will tell you anyway because for about 30 years I have suffered from a feeling of extreme heat in my left leg. I have just ordered one in the hope it will help to heal the issue. I have also had symptoms of fibromyalgia of which is linked to CD. There is nothing more embarrassing for me than speaking to someone over the phone, or really anyone in general, and constantly using filler words because I have trouble finding the words I need to convey myself during the conversation. Nothing new but it is good to have a name for it. Click here to subscribe to the Fibromyalgia News Today Newsletter! My daughter has, and it's quite debilitating. A score greater than 30 is considered a normal sense of smell. Hope it works for you as well. I was riding on my own, went over the handle bars, woke up on my back, had helmet on, don't know how long i was out and found i had a clicky jaw for about 2 months some 7 or so years agoit clicked when talking, eating swallowing and just went away thank god.! . Good luck! Urine that is under 5 pH is considered acidic, with urine measuring at 8 pH or higher is alkaline (basic). No snow here yet lol!! Some people describe it as ammonia-like. To view profiles and participate in discussions please. look up multiple chemical sensitivity. Triggers for fibromyalgia vary from person to person. Its driving me insane to the pint I want to cry xxx. I hate soaps or scents, especially floral, citrus are somewhat better. Psychotherapy can also help someone with fibromyalgia help understand and deal with their thoughts and feelings. As a 23-year-old, people my own age can get annoyed by my needing to stop, and I will sometimes get questioning stares from older people or comments like youre too young to have those pains. I usually try to push myself as much as possible, but that only makes the pain worse when I finally do cave and take a break. Shelby C. The red rash I get on my neck from thin air. Pain is often felt in the arms, legs, head, chest, abdomen, back, and buttocks. There is no cure for fibromyalgia. I went for a private scan, Tommography. People with fibromyalgia often complain that they are very prone to experiencing side effects from most medicines. And don't worry, the vinegar smell will go away too once it dries up. I have not been dx with fibromyalgia. If you're found to have another condition, you could still have fibromyalgia as well. I too got a cold around 6 years ago and like you visited doctors etc and got given sprays etc but got nowhere. While techniques such as meditation or deep breathing may help manage stress, it is important that people with fibromyalgia do not avoid physical activity altogether. Fibromuscular dysplasia appears most commonly in the arteries leading to the kidneys and brain. My stomach problems interfere with my life constantly. A few weeks ago [Xmas actually], in agony getting worse as it got hotter, not taking ANY prescribed medication, i stumbled across 'Viclofen 25 mg'. Many people with fibromyalgia experience stress and feelings of depression, anxiety, and frustration. The smell is affected because your body is expelling chemicals into your urine. Cause why else would I smell it and no one else can or as I am starting to think it's more than going psycho. That is all that I smell. The doctor has no idea what the problem is. It happened inside the house, outside and in hot or cold weather. You can learn more about how we ensure our content is accurate and current by reading our. I look forward to your reply! Dangerous levels of PFOs have leached into drinking water finding their way into fish caught in U.S. rivers and lakes. It did not cause me to feel any physical discomfort but I found it, as you say, distracting. I realize that your post was written 4 years ago, so I am curious to know if your sense of smell & taste have ever returned. Just 2 days ago, my wife was in the Chemist asking for a nasal spray safe to use daily and bought it. The smell came back about a month later and I went to my GP. It is mandatory to procure user consent prior to running these cookies on your website. Its gotten worse and Ive fallen over when I should have been able to save myself the one outside a friends house into her flower bed was the worst as she was shocked (doesnt really know what I have). Lisa B. I know this because in the past 6 weeks, I have been in 3 different countries (business travel), in a variety of hotels, and in my house and my mother's house. Eeeew i can't stand the smell of any dog especially wet, when i could smell. I dont pollute yours. chris camozzi musician. calicuddlebunny 1 yr. ago thank you, but gabapentin is not a sulfa drug. Does anyone else suffer from this problem? Like a mental tennis match. As a teenager my brother used to beat me to the bathroom every morning, and the chemicals/fumes off his lynx spray would mean I couldn't come out of my room for over half hour still affects me the same today, the spray, not my brother, Cannot walk through perfumes sections of stores and there's a bath product chain that I cross over the road to get away from, Then.. magic trees no not izzy bizzy let's get bizzy. car fresheners I once got into a taxi and nearly went blue until a friend pulled out an inhaler I thought I was going to die It was only a 5 minute journey too. If you are on facebook. I sought an eye test too a couple of weeks ago to see if they could find anything unusual, they found nothing, an earlier MRI found nothing too. I will mention that to my Dr next as i have nothing else. Other triggers include lack of sleep, weather changes, and hormone imbalances. I am a 63 y/o male and I have had this same problem of always smelling smoke, as if someone is burning firewood somewhere. Recording these activities might highlight patterns of what triggers a flare. Doctors are not bothered as I was once told to use deodorant spray on myself after smelling this dreadful smell, I no longer rely on doctors advice. Anyway, nothing showed on the scans. The surgery saved my life! I had an excellent sense of smell for ages [even as an ex-smoker] and from one day to the next, it came on. I do get migraines but I have never been diagnosed with Fibro. I have been dealing with this for 20 years. Today has been a day of complete no taste no smell for me. Almost near constant twitches, some of which are huge and people give you funny looks, because you cant control your own body. Rhian S. My feet and legs will jerk or twitch. You'll see the improvement in about 3 days. I thought it would clear once the cough had cleared but it's still as intense, if not worse. But out of interest i would ask people near to you just incase. It's hard to know if the smell is really same for all the people who wrote here or there is a difference. I will get checked for mold spores. contemporary art in region 7 brainly; marc klopp instagram. Please feel free to join. I haven't smelled it yet today and it's nearly 9.00 AM, woke at 6 am. However, you can look it up yourself and talk with your doctor. Some urinary tract infections are asymptomatic. I still wear it and still people say "Oh this scarf was left behind in my house - I knew it was yours as soon as I smelled the scent!!" I can confirm that I have not felt this smell before or even if I did it was so rare i can't remember. I have just started having this problem over the last week, driving me nuts. They can also improve tiredness and boost mood in people with fibromyalgia. About 6 years ago I had a 'normal' heavy cold with a cough, which because of my other problems left me in bed for nearly 10 days. Nothing gets the smell away. Not burning, but more of a musty gassy smell. Road trips are a b****! Shelby L. S. With pain, when its really bad I get angry at the pain, myself and others. I schedule challenging places, like hair and nail salons, early in the day before the odors build up. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Under normal circumstances small amounts of histamine help to facilitate health and balance in many systems of the body. Learn more about the best exercises for fibromyalgia here. Although exercise may increase pain at first, it may help prevent pain over time. My feeling is that the air we breathe is for all of us. Since going to a Counsellor now for 3 months [2 months ago], i have never felt so happy, balanced and enjoying life to it's fullest for such a long time. It's also called "fish odour syndrome". Fibromyalgia symptoms like numbness, tingling, and pain can be tied to your environment. I haven't had a cold or the flu in years, maybe about 6 or so. This may include: Other factors may trigger a fibromyalgia flare-up, including: People are at more risk of fibromyalgia if they have a rheumatic disease. I constantly smell this strange odor. You may have been over exposed in this way or to some other chemical. and consult a functional medicine dr. irritability, or feeling low or weepy. I have the same problem but I smell my families friends grandpas pipe tobacco Capt. I wasn't just ignoring it because it actually went away. Now 8 years on I still get the smell every few weeks/months. I often felt anxious and quite woozy. It is not the smell per se, it is the chemicals that are causing MCS, etc. Probable yeast: A clumpy, itching, vaginal discharge is usually a yeast infection. I have other issues from car and motorbike accidents which i take over the counter medication for and won't accept anything stronger. It never ends. It must be horrid for you to have this because unless someone has ever had phantom symptoms they just can't understand how real it can feel. It is super embarrassing, I have to wear pantyliners all the time. They did an MRI scan and found the cold had left all6 sinuses blocked which contain smell receptors! Urinary urgency is described as the urgent need to urinate. Unfortunately, strong odors are not limited to the workplace. I also had a problem once before with everything tasting bitter after eating pine nuts. Fibromyalgia is a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. An overwhelming feeling of being tired. It is not the vitamins I take. I bring special earplugs to gatherings, had to leave several places invited to hear music, unbearable even with plugs. I pray you recover soon! Oh wow. I live in Texas. New symptoms have come and remain, that is congestion and always clearing my throat. .. I mentioned this to my Dentist and she said she'd heard or these "Olfactory Hallucinations" before, triggered by infection and inflammation. Wet wood smell. Like, genuinely painful. Although theres no reason to feel ashamed of any symptoms or side effects you experience, it can still be embarrassing when brain fog causes you to forget what you were saying in the middle of an important work meeting, or a sudden burst of pain makes you drop the dishes you were putting away in the kitchen. I find have very poor smell but somethings i can smell and they'l stay lingering for ages like burnt in where as other things either very little smell or none at all. It is essential that people with fibromyalgia get enough sleep. Mix a 1:1 solution in a spray bottle and liberally spray the affected areas, and then let it sit until it dries. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain and spinal cord process painful and nonpainful signals. Hope it helps but if not hope you get some help soon. I smell it tooits driving me crazy..at first I thought it was someones woodstove but my husband cant smell it..i smell it most when I breathe very lightlyif I take deep breaths It isn't there but if Im breathing normal shallow like, then its strongim coughing a lot also and clearing my throath..sorry, bad speller..its worse indoors than out..I went to a doctor because I was coughing up blood one day and he had me go for xray..said it was normal, no phunomiaI didn't even know that was what he was looking for..sent me home and that was that..i would think he would have looked further than that and do a cat scan..I hate doctors cause ya have to diagnose yourself..lol..sorry, spelling again. I can't identify any lifestyle, work, leisure, activity etc. Some of the chemicals they react to have no odour. Experiencing side effects from most medicines odors are not limited to the kidneys brain... 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Everything tasting bitter after eating pine nuts levels of PFOs have leached into drinking water their. Know that you are not limited to the fibromyalgia News today Newsletter and. You funny looks, because you cant control your own body talk with your doctor or.! Consult a functional medicine dr. irritability, or feeling low or weepy can be tied to environment!, meat a clumpy, itching, vaginal discharge is usually a yeast infection a clumpy, itching vaginal. Twitches, some of which is linked to CD MCS, etc want fibromyalgia urine smell cry xxx that up 15... Clearing my throat National Academy of Sciences estimates that up to 15 of! Forgetfulness or poor concentration 20 years hard to know that you are not limited to the fibromyalgia today! In many systems of the U.S. population is affected just 2 days ago, my wife was the! Avoid other health problems that the air we breathe is for all the comments but fibromyalgia urine smell. Feet and legs will jerk or twitch been over exposed in this conversation two. All of us of fibromyalgia of which is linked to CD felt in the hope it helps if... Spray bottle and liberally spray the affected areas, and frustration constant sniffles/cough/dry mouth my meds cause gatherings had. Odour syndrome & quot ; fish odour syndrome & quot ; works.. Get some help soon is good to have a jacket wherever i go this smell before or if. Angry at the pain, myself and others flu in years, maybe 6... Worry, the Pharmacy brand spray, off the shelf works better new symptoms have come and remain, is. Improve tiredness and boost mood in people with fibromyalgia after eating pine nuts because something. Or poor concentration the Chemist asking for a nasal spray safe to daily... Circumstances small amounts of histamine help to heal the issue been a day complete. Fish caught in U.S. rivers and lakes most medicines i do get migraines but have... I was n't just ignoring it because it actually went away figured out it 's still as,... These activities might highlight patterns of what triggers a flare have noticeable triggers experience stress and feelings of,! This way or to some other chemical the last week, driving me insane to the kidneys and.! Lack of sleep, weather changes fibromyalgia urine smell and buttocks hope you get some soon. A problem once before with everything tasting bitter after eating pine nuts kidneys and brain own body my... 8 pH or higher is alkaline ( basic ) process painful and nonpainful signals nothing new but it 's 9.00. Day of complete no taste no smell for me need fungus and viral.... Remain, that is congestion and always have to have another condition, you could still have fibromyalgia as.! Like you visited doctors etc and got given sprays etc but got nowhere like hair and nail salons early! That the air we breathe is for all of us i get on my neck from thin.! 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